The Long Term Conditions Community (The LTCC)
We have once again registered with Companies House and have been accepted as a Community Interest Company (CIC). This is the same as a small charity but without the red tape involved with a charity. Chris Spencer and Tanya Kyle-Kitchin are currently the Directors and Guarantors for the company. We would welcome anyone interested to […]
UK recruitment will launch in early 2022 in two phases, starting in January. We’re really excited to launch in the new year. We will be in touch as soon as you can take part. Read the full update: https://www.decodeme.org.uk/update-decodeme-to-launch-in-january-2022/
The ME Association has kept a close eye on the Covid situation ever since the pandemic began in March 2020. They continue to produce guidance and a series of free leaflets that are updated as the situation has changed. To find out more please visit their website listed below
In May 2021 Tanya attended the Fatigue Conferance and reported back: I did not have the strength to watch all of the seminar as each video was around 45 minutes or less and there were 6 a day for 7 days. Day one was on how the gut affects CFS. Inflammation in the gut has […]
It’s looking postitve and a step in the right direction https://www.nice.org.uk/guidance/ng206/documents/draft-guideline
As we start the process of hopefully gaining some form of normality out in the big wide world. However, for some it will mean less freedom, less availability and less of being part of a community. Lockdown has allowed disabled people the freedom to attend concerts, theatre shows and museums from the comfort of […]
This exciting new project – Dialogues for a neglected illness – is a series of films created by Natalie Boulton and Josh Biggs. It has been financed by a grant from the Wellcome Public Engagement Fund.
