The Long Term Conditions Community (The LTCC)

“Following a two-year process led entirely by people with ME/CFS, carers and health and care professionals, the 10 questions on the page have been identified as research priorities. These 10 were selected from 59 which were originally suggested.”

We have now had our first two face-to-face meetings.  Thank you to those who attended.  We hope to see you all again soon.  So far, the meetings haven’t had specific agendas.  They are simply a way of getting people together to exchange experiences and views in a very casual setting, knowing everyone will be given a sympathetic and empathetic ear. The meetings […]

We had a great turn out at our first face-to-face season today at Beverley Library. This included both those with the condition and caring for the condition. The conversation flowed and everyone took part. The session ended at just over 1 and 1/2 hours We can not thank you enough for attending and supporting us. […]

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FACE TO FACE MEETING Our first face to face meeting will be held on Monday 7th March 2022 at Beverley Library from 2.30pm We hope you can come along but understand that with this condition it is impossible to make a commitment.

Chris was diagnosed with M.E. in 1999 after 6 months of quite severe post-viral fatigue.  His symptoms were initially mostly cognitive.  During the following few years, physical symptoms, particularly featuring waist-down pain, came to the fore while cognitive functioning improved.  Numerous “alternatives” were tried, unsuccessfully, during the “noughties.” In 2010, tests on mitochondrial function revealed […]

Sad News – Former member, from earlier days of the group, Louise Chaikin, sadly passed away on Christmas Eve, following an 18 month battle with cancer. We know Louise had kept in touch with several members from those days – a good example of mutual support being extended well beyond group meetings at which people first meet. We are re-posting […]