The Long Term Conditions Community (The LTCC) CIC

We have now had our first two face-to-face meetings.  Thank you to those who attended.  We hope to see you all again soon.  So far, the meetings haven’t had specific agendas.  They are simply a way of getting people together to exchange experiences and views in a very casual setting, knowing everyone will be given a sympathetic and empathetic ear. The meetings […]

We had a great turn out at our first face-to-face season today at Beverley Library. This included both those with the condition and caring for the condition. The conversation flowed and everyone took part. The session ended at just over 1 and 1/2 hours We can not thank you enough for attending and supporting us. […]

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FACE TO FACE MEETING Our first face to face meeting will be held on Monday 7th March 2022 at Beverley Library from 2.30pm We hope you can come along but understand that with this condition it is impossible to make a commitment.

Chris was diagnosed with M.E. in 1999 after 6 months of quite severe post-viral fatigue.  His symptoms were initially mostly cognitive.  During the following few years, physical symptoms, particularly featuring waist-down pain, came to the fore while cognitive functioning improved.  Numerous “alternatives” were tried, unsuccessfully, during the “noughties.” In 2010, tests on mitochondrial function revealed […]

Sad News – Former member, from earlier days of the group, Louise Chaikin, sadly passed away on Christmas Eve, following an 18 month battle with cancer. We know Louise had kept in touch with several members from those days – a good example of mutual support being extended well beyond group meetings at which people first meet. We are re-posting […]

We have once again registered with Companies House and have been accepted as a Community Interest Company (CIC).  This is the same as a small charity but without the red tape involved with a charity. Chris Spencer and Tanya Kyle-Kitchin are currently the Directors and Guarantors for the company.  We would welcome anyone interested to […]

UK recruitment will launch in early 2022 in two phases, starting in January. We’re really excited to launch in the new year. We will be in touch as soon as you can take part. Read the full update: https://www.decodeme.org.uk/update-decodeme-to-launch-in-january-2022/