We have now had our first two face-to-face meetings. Thank you to those who attended. We hope to see you all again soon. So far, the meetings haven’t had specific agendas. They are simply a way of getting people together to exchange experiences and views in a very casual setting, knowing everyone will be given a sympathetic and empathetic ear. The meetings […]
Author: heymecfs
Long Covid and ME/CFS
Covid-19: Long Covid & ME/CFS An extensive 40 page booklet which reviews the overlaps between Long Covid and ME/CFS is available for free download.. Click this link pwME #MECFS #MyalgicE #LongCovid #PostCovid
Free introductory videos about ME/CFS
https://www.eleanorsteinmd.ca/pathways
Our First Session
We had a great turn out at our first face-to-face season today at Beverley Library. This included both those with the condition and caring for the condition. The conversation flowed and everyone took part. The session ended at just over 1 and 1/2 hours We can not thank you enough for attending and supporting us. […]
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Face to face
FACE TO FACE MEETING Our first face to face meeting will be held on Monday 7th March 2022 at Beverley Library from 2.30pm We hope you can come along but understand that with this condition it is impossible to make a commitment.
How our Chairman was diagnosed with M.E./CFS
Chris was diagnosed with M.E. in 1999 after 6 months of quite severe post-viral fatigue. His symptoms were initially mostly cognitive. During the following few years, physical symptoms, particularly featuring waist-down pain, came to the fore while cognitive functioning improved. Numerous “alternatives” were tried, unsuccessfully, during the “noughties.” In 2010, tests on mitochondrial function revealed […]
Our deepest condolences
Sad News – Former member, from earlier days of the group, Louise Chaikin, sadly passed away on Christmas Eve, following an 18 month battle with cancer. We know Louise had kept in touch with several members from those days – a good example of mutual support being extended well beyond group meetings at which people first meet. We are re-posting […]
GREAT NEWS!
We have once again registered with Companies House and have been accepted as a Community Interest Company (CIC). This is the same as a small charity but without the red tape involved with a charity. Chris Spencer and Tanya Kyle-Kitchin are currently the Directors and Guarantors for the company. We would welcome anyone interested to […]
UK recruitment will launch in early 2022 in two phases, starting in January. We’re really excited to launch in the new year. We will be in touch as soon as you can take part. Read the full update: https://www.decodeme.org.uk/update-decodeme-to-launch-in-january-2022/