The Long Term Conditions Community (The LTCC) CIC
Adequate sleep is crucial for safe driving as it directly impacts cognitive functions such as attention, reaction time, and decision-making abilities. Sleep deprivation or fatigue can lead to impaired concentration and slower response to changing road conditions, increasing the risk of accidents. Prioritizing sufficient sleep ensures drivers are alert and focused, promoting road safety for […]
I say make it as easy for yourself as possible. So I do all my Christmas shopping online (which means I sometimes get Black Friday deals too). The festive period with my family runs from my dad’s birthday on Christmas Eve til everyone goes back to work after new year. It’s fun but busy and […]
Group emails, such as the Newsletter, will no longer be sent via gmail. We have updated our mailing system and for the benefit of your data protection we are now using the secure mailing system mailchimp. Please use the signup form at the bottom of the home page to give us permission to add your […]
By Chris I was diagnosed with M.E. in 1999 after 6 months of quite severe post-viral fatigue. My symptoms were initially mostly cognitive. During the following few years, physical symptoms, particularly featuring waist-down pain, came to the fore while cognitive functioning improved. Numerous “alternatives” were tried, unsuccessfully, during the “noughties.” In 2010, tests on mitochondrial […]
By Tanya I am 46 years old. I was diagnosed in 2018 after experiencing extreme pain for 2 months that kept getting worse. I also felt tired beyond anything I could believe in and so emotional. I went to my G.P. and cried. I begged him to cut my skin to relieve the pain. He […]
We regret to inform you of the passing of Gillian Swan. She died, very peacefully, on Sunday morning, 23 April 2023, aged 87, at Beverley Grange Nursing Home where she had lived for the past few years. She has been in a very frail state of health for most of the time she has been […]
We just wanted to let you know about a new study we’re running that might be relevant to you. We are currently looking to speak with patients diagnosed with Fibromyalgia Participants will be asked to complete an interview which will take approximately 60 minutes and to complete some tasks before and after the interview. The […]
The Grid published a thorough article examining how viral infection can lead to the development of post-viral diseases, including Long COVID and ME/CFS, and how this is a unique opportunity to move the research forward if we listen to patients. #MEAction spoke with The Grid on various occasions to educate them about ME/CFS, and the […]
“Following a two-year process led entirely by people with ME/CFS, carers and health and care professionals, the 10 questions on the page have been identified as research priorities. These 10 were selected from 59 which were originally suggested.”